As the mom of a rock star with low tone, you hear the same things over and over. Some are sincere, kindhearted questions and suggestions. Others are…not so kindhearted.

Here are just a few:

 

I hope so. And we work on it every day. But he has real physical limitations. Ignoring that fact is a mistake. Low tone won’t magically go away. That’s why I do everything I can to get him all the help he needs.

 

Hypotonia robs her of stability. But like everyone else, she’s learning to work within her own limitations. If I replaced your legs with two spaghetti noodles, how far could you walk?

 

Nope, nope, nope. Low tone and weakness? They’re not the same thing. Kids with hypotonia can actually be very strong. But you know what real strength is? Overcoming the obstacles he faces every single day.

 

Stop. Comparisons don’t help anyone. It’s great that by 12 months your child could walk, run, and fly. But mine has low tone. She’ll go at her own pace, and there’s nothing wrong with that.

 

No, I just know my child. She may need a bit more TLC than the next kid, but we’re always moving forward, one inchstone at a time.

 

Outgrow? Never. Muscle tone doesn’t change. Adapt, overcome, and be awesome? Every day.

 

Seriously? I’d LOVE to be exhausted after a long day of chasing her around the house. Instead, I’m tired from carrying her from one appointment to the next.

 

 

Learn more about hypotonia